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DTSTART;TZID=America/New_York:20241204T130000
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SUMMARY:Policy Power Lunch\, Rethinking Research: Autism in Indigenous Communities: Generating Community-Engaged Research and Policy
DESCRIPTION:Join the policy Impact Project for our Policy Power Lunch Series Rethinking Research: Autism in Indigenous Communities– Bridging Gaps in Autism Research and Policy. \nWe aim to spotlight unique issues affecting autistic people from Indigenous communities in the United States. We hope to empower researchers\, stakeholders\, policy experts\, and advocates who actively engage with Indigenous and Actually Autistic communities. The focus will be on the needs of the communities the panelists serve or conduct research with\, special considerations around the conduct of research and use of data that represents Indigenous people\, and thoughts on how to support the needs of Indigenous people by better informing the policies that affect them. \nRegister Here\n \nJoshua Drywater \nDirector of Native Initiatives \nVirginia Commonwealth University’s Rehabilitation Research and Training Center \nJoshua Drywater is a Training and Technical Assistance Associate at Virginia Commonwealth University’s Rehabilitation Research and Training Center\, focusing on Indigenous inclusivity and Native Initiatives. Previously\, he managed Native Initiatives at the University of Arizona’s Sonoran Center for Excellence in Disabilities\, supporting individuals facing employment barriers. He holds an MBA in Native American Leadership from Southeastern Oklahoma State University and is a graduate of the University of Oklahoma Economic Development Institute. As a Cherokee Nation citizen and Army combat veteran\, Joshua has extensive experience managing tribal economic and workforce development programs\, including CAREER\, ER\, TET\, and DEI grants\, and overseeing ARPA and Public Law 102-477 funds. \n \nOlivia Lindly\, PhD\, MPH (She/Her/Hers) \nAssistant Professor \nDepartment of Health Sciences\, Northern Arizona University \n\n\n\n\n\n\nDr. Olivia Lindly is an assistant professor in the Department of Health Sciences at Northern Arizona University. Dr. Lindly’s academic background is oriented in psychology and public health. She completed the predoctoral junior fellowship program at the Agency for Healthcare Research and Quality and the postdoctoral Harvard-wide Pediatric Health Services Research Fellowship program at Massachusetts General Hospital. Some of Dr. Lindly’s current research studies include NIMH R01 Addressing Structural Disparities in Autism Spectrum Disorder through the Analysis of Secondary Data (ASD3) and NIMH R01 Validating Measures and Unpacking Differences in Service Use for Diverse Children with Autism. These projects both involve mentorship and training components for diverse students\, fellows\, and/or staff\, many of whom are from underrepresented backgrounds in the biomedical and behavioral health sciences. Dr. Lindly recently led and completed grants to adapt and pilot the Parents Taking Action program (an evidence-based parent education and training intervention) for Diné (Navajo) parents/guardians of children with autism. She and Dr. Running Bear recently received a grant from Mercy C.A.R.E.S. to sustain and spread this work in partnership with a 638 autism diagnostic clinic in the Navajo Nation along with an NIMH R21 on culturally responsive autism assessment for Diné families. Dr. Lindly has extensive training\, expertise\, and a well-established track record of successful collaboration with families of children with autism and community-based organizations. \n\n\n\n\n\n\n \nCandi Running Bear\, PhD (She/Her/Hers) \nAssistant Professor \nEarly Childhood Department\, Western New Mexico University \nDr. Candi Running Bear is a citizen of the Navajo Nation from St. Michaels\, AZ. She is of the\nHashk’ąąn Hadzohí (Yucca fruit hung on a string) clan and born for the Ma’ii Deeshgiizhinii\n(Coyote pass/Jemez) clan. She was a special education early childhood classroom teacher for more than a decade. Her academic degrees include a BS in psychology\, an MA in special education\, and a PhD in curriculum and instruction with a focus on culturally and linguistically diverse exceptional children. Dr. Running Bear is an assistant professor at Western New Mexico University in the Early Childhood Department. She has conducted research regarding literacy for Diné preschoolers and parent training for Diné families of a child/children with autism. Presently\, she is working with a team to sustain and spread the use of the adapted parents training program\, Parents Taking Action\, for Diné families of children with autism. With another team she is working on a project that aims to develop recommendations to ensure that autism assessment practices and the context in which assessments occur are culturally responsive for Diné families who have a child with autism. Her future research interests are to use a community engaged approach to analyze existing large data sets that include information about young American Indian/Alaska Native children with disabilities which can benefit indigenous children\, families\, and their communities.
URL:https://policyimpactproject.org/event/policy-power-lunch-whats-in-your-advocacy-toolbox-building-the-skills-to-connect-with-policymakers-2/
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250320T120000
DTEND;TZID=America/New_York:20250320T130000
DTSTAMP:20260504T025535
CREATED:20250227T131335Z
LAST-MODIFIED:20250301T153349Z
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SUMMARY:Understanding the news: What disability advocates should know about the potential impacts of health and education policy changes to the federal government
DESCRIPTION:Recent executive orders have led to suggested and enacted cuts to federal funding for departments\, agencies\, grants\, and programs. Many of these actions may have direct or indirect effects on people with neurodevelopmental disabilities including autism. Our panelists will discuss their perspectives on potential changes to health and education policy in this nation. The goal of this webinar is to provide facts to help our community understand what they are hearing in the news and what it means for people with neurodevelopmental disabilities. \nRegister Here\n \nJoanne Juhnke \nAdvocacy Specialist \nDisability Rights Wisconsin \nJoanne Juhnke has been advocating for Wisconsin students with disabilities on a grassroots level since 2007 and professionally since 2013.  Her work is informed by her experience as the mother of a young adult daughter whose disabilities include autism and who is in her last semester of 18-21 public school education.  As an advocacy specialist on the Children & Youth team at Disability Rights Wisconsin\, Joanne assists Wisconsin families to navigate challenges in education and long-term care and also contributes to systems-level policy advocacy. \n \nAri Ne’eman\, PhD \nAssistant Professor of Health Policy and Management \nHarvard T.H. Chan School of Public Health \n\n\n\n\n\n\nAri Ne’eman is an Assistant Professor of Health Policy and Management at the Harvard T.H. Chan School of Public Health. His research focuses on the role that public policy can play in facilitating the inclusion of people with disabilities throughout society. His work has been published in Health Affairs\, Health Services Research\, the New England Journal of Medicine\, and other peer-reviewed journals. Prior to entering academia\, Dr. Ne’eman served as executive director of the Autistic Self Advocacy Network and as one of President Obama’s appointees to the National Council on Disability. \n\n\n\n\n\n\n  \n 
URL:https://policyimpactproject.org/event/understanding-the-news-what-disability-advocates-should-know-about-the-potential-impacts-of-health-and-education-policy-changes-to-the-federal-government/
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DTSTART;TZID=America/New_York:20260324T120000
DTEND;TZID=America/New_York:20260324T130000
DTSTAMP:20260504T025535
CREATED:20260204T173305Z
LAST-MODIFIED:20260219T182516Z
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SUMMARY:Research and Policies on Urban Planning for Autistic-Friendly Cities
DESCRIPTION:This webinar examines how research can guide policies to create inclusive urban environments for autistic people. Experts in urban design\, public policy\, and neurodiversity advocacy will highlight current challenges and present innovative solutions for the future of city planning. \nWhat attendees will learn: \n\nDesign Approaches: Strategies for creating sensory-friendly public spaces.\nInfrastructure: Developing accessible and predictable transportation systems.\nCommunity Support: Building and maintaining supportive local services.\nPolicy & Advocacy: Integrating autistic-friendly principles into official planning agendas.\nStakeholder Engagement: Practical insights on meaningful collaboration with the neurodiverse community.\n\nThe session will feature interactive discussions and practical strategies to help move these concepts from research into reality. \nRegister Here\n\nPresenter  \n \nDr. Gala Korniyenko \nDr. Gala Korniyenko\, a lecturer at the Knowlton School of Architecture in Ohio State’s College of Engineering\, is a director of research and development at the National Youth Advocate Program. Her research centers on public participation with a particular emphasis on inclusive decision-making and a goal to inform equitable service delivery and adaptive urban environments. Korniyenko holds a Master of Urban Planning from the University of Kansas and a Doctorate in City and Regional Planning from the Knowlton School\, with a graduate Minor in Public Policy and Management from the John Glenn College of Public Affairs. Korniyenko brings this interdisciplinary perspective to both research and practice\, contributing to projects that explore how cities can be designed to support autonomy\, dignity and belonging for all residents. Notably\, she co-developed the Six Feelings Framework for Autism Planning and Design Standards\, a research-based tool that translates sensory and emotional insights into practical design strategies for more inclusive public spaces. \nModerator  \n \nDr. Wainesten Silva \nDr. Wainesten Silva is a professor at the University of Tocantins\, where he teaches in the Law School and in the doctoral program in Public Policy Management. His research focuses on autism and disability studies\, with particular emphasis on the intersection of law\, public policy\, sociodemographic data\, and urban and territorial planning. His work seeks to translate research evidence into actionable policy frameworks that promote inclusion\, equity\, and improved access to rights and services for autistic individuals and their families.
URL:https://policyimpactproject.org/event/research-and-policies-on-urban-planning-for-autistic-friendly-cities/
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