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LogoLogoLogo
  • About Us
    • Meet The Team
  • Policy Areas
    • Economic and Financial Wellbeing
    • Health Care and Financing
    • Equity and Social Justice
    • Transition to Adulthood
    • Criminal Justice
    • Housing and Community Living
  • National Autism Indicators Reports
  • Research and Writing
    • Publications
    • Blog
    • Policy Briefs
    • Multimedia
  • Tips and Tools
  • Events and Workshops
    • Archived Events

Short Report on Effectiveness of an Autistic-Delivered Peer Support Program: Preliminary Results

By Wei SongMark S. SalzerKaty Kaplan Mi-Yeet WongDisha Uppal Lindsay L. Shea

August 9, 2023

CAPS program by autistic peers improves autistic individuals' community functioning.

Transportation Use and Barriers for Employed and Unemployed Autistic Adults

By Beth PfeifferWei SongAmber Davidson Mark Salzer Cecilia Feeley Lindsey Shea

August 4, 2023

Better transportation access can increase the success of autistic job seekers

Unrealized Cross-System Opportunities to Improve Employment and Employment-Related Services Among Autistic Individuals

By Anne M. RouxKaitlin K. MillerSha TaoJessica E. RastJonas VentimigliaPaul T. ShattuckLindsay L. Shea

August 1, 2023

High rates of unemployment in autistic population. VR outpaces Medicaid in serving employment needs. Concerning lack of overall employment services.

Same Transition, Different Perspectives: Comparing Dyadic Interviews with Autistic Young Adults and Parents

Lifespan Services and Supports, Transition into adulthood

By Hillary SteinbergTamara GarfieldAnne RouxLindsay SheaPaul Shattuck

July 4, 2023

Autistic youth's needs differ in their eyes compared to that of their parent's

Developing “Adulting for Health”: Investigating the Health Needs of Neurodivergent Emerging Adults

Lifespan Services and Supports, Mental Health, Transition into adulthood

By Emily HotezJulianna RavaLindsay SheaAlice Kuo

June 28, 2023

Neurodivergent emerging adults experience poor mental and physical health. Existing interventions are insufficient.

Short report on navigating access to care for Medicaid-enrolled autistic youth and young adults: Examining accrual of intellectual disability diagnoses in adolescence

Health, Lifespan Services and Supports, Systems Transformation, Transition into adulthood

By Meghan Carey Katherine ArdeleanuLindsay Shea

June 5, 2023

Autistic individuals on Medicaid face challenges transitioning to adulthood, often losing coverage. Expanding Medicaid could improve outcomes.

Feeling intimidated and uncomfortable: Established and exacerbated educational inequities experienced by black parents of autistic children

Education, Equity

By Kaitlin Koffer MillerDylan Cooper Jonas C. VentimigliaLindsay L. Shea

March 16, 2023

This study reveals disparities in educational experiences and challenges faced by Black parents of autistic children compared to white parents, emphasizing the need for equity…

Association Between Medicaid Waivers and Medicaid Disenrollment Among Autistic Adolescents During the Transition to Adulthood

Health, Systems Transformation, Transition into adulthood

By Lindsay SheaMeghan CareySha TaoKaitlin Koffer Miller

March 13, 2023

Autistic youth face higher Medicaid disenrollment risk, but waivers can mitigate the problem.

Prevalence of high-risk conditions for severe COVID-19 among Medicaid-enrolled children with autism and mental health diagnoses in the United States

COVID-19, Health, Mental Health

By Whitney SchottSha TaoLindsay Shea

February 17, 2023

Children with autism and mental health conditions have higher odds of underlying health conditions that put them at risk of severe illness from COVID-19 compared…

Transportation and Community Participation Among Autistic Adults

Lifespan Services and Supports, Systems Transformation

By Wei Song

February 15, 2023

Transportation options impact community participation of autistic adults, with greater access and independent modes enhancing engagement. Support should be provided to facilitate their desired participation.

Disparities by Race and Ethnicity in Inpatient Hospitalizations Among Autistic Adults

Health, Systems Transformation

By Jessica RastWhitney SchottLindsay L. Shea Sherira J. Fernande

February 9, 2023

This study analyzed hospitalizations of autistic adults in the US by race and ethnicity. Differences in rates of hospitalization for mood disorders, epilepsy, schizophrenia, and…

Prioritizing Social Determinants of Health in Public Health Surveillance for Autism

Lifespan Services and Supports, Systems Transformation

By Lindsay Shea, DrPH

January 26, 2023

This article highlights the prevalence of cooccurring intellectual disability in autistic children and emphasizes the impact of social determinants of health on autism prevalence, recommending…

Creating the Global Criminal Justice Survey: A Questionnaire Designed to Gather Perspectives from the Autism Community and Criminal Justice Professionals

Criminal Justice, Systems Transformation

By Dylan CooperLindsay Shea

January 13, 2023

This study aimed to develop a comprehensive stakeholder questionnaire to understand the perceptions of autistic people and criminal justice professionals on their interactions globally. Data…

Evidence from the Autism Transitions Research Project (2017–2022): Capstone review and services research recommendations

Education, Health, Lifespan Services and Supports, Mental Health, Systems Transformation

By Anne RouxLindsay SheaHillary SteinbergJessica RastKristey Anderson Emily HotezKashia Rosenau Alice KuoEvva Assing-MurrayPaul T. Shattuck

January 9, 2023

This review of a federal Autism Transition Research Project identified gaps in research on transition services for autistic youth and recommended priorities for future research,…

The Scholarly Neglect of Black Autistic Adults in Autism Research

By DeVoshia L. Mason Martin

December 13, 2022

Black autistic individuals, regardless of age, have not been centered in autism research.

Intersectionality on the Horizon: Exploring Autism in Adulthood from a Unique Vantage Point

Equity, Health, Transition into adulthood

By Kristina Lopez

December 13, 2022

Autism's impact varies across demographics; intersectionality theory explores intersecting identities and experiences. Two-part special issue highlights intersections with race, ethnicity, culture, and LGBTQ+.

Intersectionality on the Horizon: Exploring Autism in Adulthood from a Unique Vantage Point

Equity

By Kristina Lopez

December 13, 2022

Autism and intersectionality explored in two-part special issue, discussing impact on adulthood outcomes and experiences.

The Periodic Risk Evaluation: A new tool to link Medicaid-enrolled autistic adults to services and support

Health, Lifespan Services and Supports, Systems Transformation

By Lindsay SheaKaitlin Koffer Miller

October 1, 2022

PRE: New tool for Medicaid identifies at-risk autistic adults, drives support changes.

A national profile of substance use disorder among Medicaid enrollees on the autism spectrum or with intellectual disability

Health, Lifespan Services and Supports

By Anne RouxSha Tao

June 1, 2022

Higher prevalence of substance use disorders (SUDs) among individuals with intellectual and developmental disabilities (IDDs).

Meeting the Primary Care Needs of Autistic Individuals

Equity, Health, Systems Transformation

By Alice Kuo

April 1, 2022

Improving primary care for autistic adults and addressing health care barriers.

Lifespan service receipt and unmet needs among individuals on the autism spectrum

Equity, Lifespan Services and Supports

By Wei Song

March 23, 2022

Autistic individuals face gaps in services and unmet needs across their lifespan, requiring improved support.

Policy gaps and opportunities: A systematic review of autism spectrum disorder and criminal justice intersections

Criminal Justice

By Dylan CooperDisha UppalLindsay Shea

January 24, 2023

Rising autism rates lead to increased contact with criminal justice system. Research and solutions needed for equitable justice.

Co-occurring conditions and racial-ethnic disparities: Medicaid enrolled adults on the autism spectrum

Equity, Health

By Whitney SchottSha TaoLindsay Shea

December 2, 2021

Autistic adults have varying odds of developing co-occurring conditions, with racial disparities observed in certain health conditions.

The prevalence and incidence of early-onset dementia among adults with autism spectrum disorder

Health

By Giacomo VivantiLindsay Shea

August 11, 2021

Higher prevalence of early-onset dementia found in adults with autism spectrum disorder (ASD).

Producing Child-Centered Interventions: Social Network Factors Related to the Quality of Professional Development for Teachers of Autistic Students

Health, Systems Transformation

By Elizabeth McGhee Hassrick

June 24, 2021

Autistic students benefit from personalized goals aligned with evidence-based practices, but lack of teacher training and support hinders implementation. Social network resources impact the performance…

Community participation patterns among autistic adults and associated characteristics: A latent class analysis

Lifespan Services and Supports, Mental Health

By Wei Song

November 1, 2021

Community participation can buffer stress and anxiety and improve quality of life for autistic adults.

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